Community Of Us
Your community for information, advocacy, and support

THE COMMUNITY OF US

We are the Patient & Professional Advocacy Team at
Amicus Therapeutics

The Patient & Professional Advocacy (P&PA) Team at Amicus Therapeutics is here to listen to and empower people living with rare diseases—patients, their families and caregivers, their communities and health-care professionals. We focus on and support the person. Our extraordinary patient dedication drives us to provide what we like to call, Healing Beyond Disease™.

WHAT MAKES
US DIFFERENT?

That kind of teamwork may be rare, but it’s not rare here. Because this is the Community of US.

know us

Explore all the information, resources, and advocacy opportunities we offer patient organizations, individuals and their families.

ask us

Need more? Expanding disease awareness and connecting people living with rare diseases is what we do.

join us

Work alongside us to raise a stronger voice in the world, monitoring and calling on government organizations and policy makers to make rare disease part of the public health conversation.

tell us

We are dedicated to listening, partnering and collaborating with everyone who makes up the rare disease community.

Being persistently positive in the face of rare disease™

WATCH

WE FOCUS ON COMMUNITY CHAMPIONS

Andrèa
"I became a Fabry Champion because I wanted to help educate people in Mexico about rare diseases. Many people with Fabry don’t have much money or access to resources. There needs to be more awareness of the impact of Fabry on both patients and loved ones."
Jenna
“I want to be a Pompe Champion because I feel responsible for my children’s condition, and I can’t change it. But by being a Pompe Champion I can make a difference for my kids and other people living with Pompe disease.”
Dwayne
“My goal as Pompe Champion is to talk to other people living with Pompe disease and to let them know that you really must put effort in to get the best care possible for yourself. Nothing is going to happen if you don’t try. People also need to know that they are not alone. This isn’t the end. It is a new beginning, and you just need to do things differently.”

Browse our resource library complete with educational materials.

VIEW RESOURCES